This could be a "World Day" again, Autism Day, but in France, the families certainly do not want to pass up in indifference, in particular that of much of the political class. The verdict is clear: almost one in two family is not happy with the care of his autistic child, this is what has just revealed a survey by the foundation and FondaMental site Doctissimo.
By the way, what is autism?
- Autism (or more generally the ASD) is a developmental problem that is characterized by:
- impairments in communication
- difficult social interactions
- restricted interests
These signs appear during the first three years of life, sometimes as early as the first months, sometimes after a short or long period of apparently normal development.
Global research agrees that this disorder is a neurodevelopmental, although its precise causes are unknown and potentially due to multiple factors. According to the latest research by the US group Autism Speaks, a child of 68 would be affected by autism. Boys are more affected than girls, a boy of 42 would be reached.
In recent years, scientists have shown that people with autism spectrum disorders could learn lots of things, according to their own potential and a learning method adapted to their needs.
Relatives who make many sacrifices, including financial, complain a deplorable school integration, the recurrent lack of school life Auxiliary of the decision-deficient educational and behavioral management yet recommended by the Health Authority of poor coordination between specialists such as psychologists, speech ....
Associations that are at arm's length the claims of these families of autistic children are so exhausted from having to fend for themselves and feel like preaching in the desert they are considering turning to the courts . A dozen families launched the offensive in seeking compensation from the Ministry of Health at first, considering the damage each to over 100 000. The damage is not only economic number of autistic parents end up isolating or separating. At the height of their anger, they ask (and us) but why France, she treats the Council of Europe with contempt? It warns or regularly condemns (It's never the fifth time!) To discriminate against its autistic children.
Mr. Eric Dupond-Moretti agrees: "The discrimination is due to disability is a crime punishable by three years imprisonment and a fine of € 4,500, the lawyer said. Whether to make a trial, a trial will! "
The integration of their disabled children in the regular school system, in sports clubs and schools of music, this is the first wish of families. 3,700 of them gathered in the SOS Autism France, then say "dismayed" by the amendment AS 1488 that try to pass the socialist deputies in Parliament. They believe that this amendment is in contradiction with the law on equal opportunities in 2005, since it leaves the full power houses the Departmental Disability. The MDPH says Olivia Cattan, president of SOS Autism France could "act independently in the future of our children by exiling them in Belgium, putting them in day hospitals and psychiatric hospitals even against the wishes of families ".
In a letter directly to President François Hollande in this World Autism Awareness Day, Olivia Cattan puts points on the "i" and gets angry: "When will you conduct a genuine large-scale campaign to catch up over forty years in France? "she asks. She calls a "scoop" the training of teachers and school life Auxiliary proposed by Ségolène Neuville, the Secretary of State for Disability and the fight against exclusion. Denouncing "a policy of indifference and rejection of difference," the president of SOS Autism France asks in conclusion the Head of State "a strong gesture."
This Thursday, the association is also launching a major national awareness campaign entitled "I am autistic and then?". 13 spots, produced by filmmaker Patrice Leconte, will be aired on several French television channels and all the movie screens. Each one depicts the encounter of an autistic child with an actor, a singer, an athlete or a comedian.
And there are beautiful people: the actors Valérie Bonneton and Bruno Wolkowitch, the dancer Marie-Claude Pietragalla, singers Marc Lavoine, Calogero, Matthieu Chedid, the musician Jean-Félix Lalanne, the champions Emmanuel Petit, Frederic Michalak, David Douillet Henri Leconte, Philippe Candeloro, cartoonist and humorist Philippe Geluck, and Gerard Klein, who is recovering in the skin of "L'instit" for the occasion. Thirty personalities have also agreed to take the floor to support the operation that is sponsored by the actors Charles Berling and Guillaume Canet.
A new association, "Autism, Ambition, Future", was born in Lyon. As always, it depends on the motivation of a couple who has a 14 year old son with Autism Spectrum Disorders and which, without assistance of care and appropriate structures, is found in a center for children with motor disorders. Like thousands of others, this couple feels abandoned by the French government; to address its shortcomings, it has created an association. But without subsidies, how long will it hold up?
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